Advocacy News Feed Loading…
Pharma FundingDec 2023KFF Health News & Public Citizen
Public Citizen's landmark analysis documented that PhRMA and 31 member companies provided at least $6 billion in grants to more than 20,000 organizations over 12 years — dwarfing their federal lobbying and campaign contributions combined. Organizations receiving these funds were significantly less likely to support drug pricing reform legislation that would benefit their own patient constituencies.
Read the full analysis →
CIF Position
Cold Ischemia Foundation accepts zero pharmaceutical funding by founding constitutional constraint — not policy preference. This is why we can say what organizations receiving this money cannot.
Fraud & EnforcementSept 2025HHS Investigation / KSTP
An HHS investigation into an OPO serving Kentucky, Ohio, and West Virginia found at least 28 patients may not have been deceased at the time of organ preparation, with 73 patients showing neurological signs incompatible with donation between December 2024 and February 2025. CMS announced "major reforms" including an independent oversight board and a direct patient reporting channel.
Read the investigation →
CIF Position
CIF's 40 Documented Federal Violations audit addresses exactly these structural OPO oversight failures. A direct reporting channel is not reform — it is the minimum accountability floor that should have existed from day one.
Organ TransplantJan 2025UNOS / OPTN
Despite a fifth consecutive record year, 104,000 Americans remain on the waiting list and 17 people die daily. UNOS is calling on Congress to mandate automated donor referrals, in-cabin airline organ transport, and a national organ tracking system.
Read the UNOS release →
CIF Context
48,000 new transplants means 48,000 new care partners added to an already burdened population with zero federal protection, training, or compensation requirements.
Pharma Conflicts2024Investigate Europe
Pfizer, Novo Nordisk, and AstraZeneca poured €110 million into patient advocacy organizations across Europe in 2022 alone. One researcher summarized the mechanism: "Patient groups are better marketing managers than pharma companies because they are seen as neutral or objective."
Read the investigation →
CIF Position
This quote describes exactly the mechanism CIF was built to expose and refuse to participate in. Patient groups perceived as neutral while funded by industry are not neutral — they are unacknowledged marketing infrastructure.
Kidney Disease2024American Kidney Fund
American Kidney Fund Corporate Sponsor List: DaVita, Fresenius, AstraZeneca, Amgen, GSK and 20+ More
The AKF's publicly disclosed sponsor list includes DaVita, Fresenius Medical Care, AstraZeneca, Amgen, GlaxoSmithKline, Akebia, Alnylam, Otsuka, Cara Therapeutics, Horizon Therapeutics, and more than 20 additional pharmaceutical and dialysis corporations whose practices directly control the lives of the kidney patients AKF claims to represent.
View the full sponsor list →
CIF Position
The AKF sponsor list is a map of conflicts of interest. Every corporation on that list has a financial stake in the advocacy positions AKF takes — or does not take — on their behalf.
Industry CaptureMultiple YearsFresenius Medical Care
Fresenius Medical Care North America, the world's largest dialysis provider, contributed over $1.8 million to the NKF across two years as National Presenting Sponsor of the NKF Kidney Walk. The NKF simultaneously receives funding from Amgen, AstraZeneca, DaVita, and dozens of other pharmaceutical and dialysis corporations.
Read the announcement →
CIF Position
An organization accepting $1.8 million from the world's largest dialysis provider cannot independently evaluate that provider's patient outcomes, mortality rates, or regulatory compliance. That is not a conflict of interest. It is a conflict of purpose.
Transplant ScienceMar 2026Global Observatory on Donation & Transplantation
The Global Observatory on Donation and Transplantation's 2024 report documents a record 173,727 solid organ transplants worldwide — a 2% global increase driven largely by donations after circulatory death, which accounted for 28% of all deceased donation activity. Major challenges persist including continued organ shortage and pronounced geographic disparities in transplant access.
Read the GODT report →
Governance FailureDec 2025UNOS / HRSA
Following years of congressional scrutiny, HRSA assumed full management of the OPTN website from UNOS in December 2025. A Senate HELP Committee hearing on the future of the OPTN was held December 11, 2025. Care partner representation remained absent from the witness list — zero care partners testified before the committee governing the system that requires their labor.
Read UNOS advocacy positions →
CIF Position
UNOS governance reform proceeds without a single care partner voice at the table. The system is reforming itself around the people it extracts labor from.
Live News Feed Via RSS · Filtered for Relevance
Fetching live advocacy news…