Project Donor-Flow · Living Donor Journey

One person. One kidney.
One more life.

Living donation is one of the most generous things a person can do, and one of the least understood. This guide walks you through every step, shows where willing donors get lost, and ends with a readiness profile built around your answers, so you can start the conversation with clear eyes.

103,223people on the U.S. transplant waiting listorgandonor.gov [1]
86%of them are waiting for a kidneyorgandonor.gov [1]
13people die every day while waitingorgandonor.gov [1]
7,030living donors in 2024, a near-record yearOPTN [2]
Start with the worry, not the form

What worries you most? Say it. Get a straight answer.

Most people who think about donating never make the first call, and the biggest reasons are fear and not knowing. Tap what is on your mind, or type it in your own words. You get an honest answer now, and nothing leaves your device.

The Journey, Step by Step

Seven stages. You can stop at any of them.

Tap a stage to see what happens, how long it usually takes, who pays, and how to keep from getting stuck. Switch between kidney and liver donation to see what changes.

Where Willing Donors Are Lost

Half of evaluated candidates never get to donate.

The Living Donor Collective followed 2,107 consecutive kidney donor candidates at 10 U.S. programs. Here is what happened to them.

2,107candidates started an evaluation
1,578received a decision
790were approved to donate

Kasiske et al., Transplantation Direct, 2021 [3]

Why the others were not approved

Medical issues (other than kidney-disease risk)25.3%
Risk of future kidney disease18.5%
The candidate withdrew15.2%
A reason on the recipient’s side13.6%
Anatomy that posed a risk to the recipient10.3%
Psychosocial (not economic)10.3%
Other reasons6.4%

Share of 617 candidates not approved. Amber bars are reasons that better information, planning, or coordination can often change.

Many of these losses are preventable.

People withdraw when the process is slow, confusing, or costly. They are declined when a fixable issue, such as unmeasured blood pressure, weight, smoking, or a missing support plan, surfaces late. Recipients change status, and the donor’s whole evaluation is lost instead of redirected.

This tool exists to move those discoveries to the beginning: to help you understand the process, spot what you can work on now, and arrive at a transplant center prepared.

Build my profile
Myths That Stop People

Tap a card. Flip the myth.

A Bigger, Smoother System

Today, every transplant center starts from zero.

A donor who is declined at one program, whose recipient changes, or who moves, usually starts over somewhere else: new forms, repeated tests, a new wait. Project Donor-Flow proposes a connected system.

Siloed today

Each center runs its own intake and evaluation. Records rarely travel with the donor.

DONOR CENTER AINTAKE · TESTS · WAIT CENTER BINTAKE · TESTS · WAIT CENTER CINTAKE · TESTS · WAIT START OVER

Connected: Project Donor-Flow

One shared intake, one portable record, one coordinated hand-off to the right program.

DONOR SHARED INTAKE+ PORTABLERECORD CENTER A BEST MATCH CENTER C
Faster decisionsFixable issues surface at first contact instead of months in.
Lower overheadTests and records are shared, not repeated at each program.
Better accessDonors are routed to programs and paired exchanges that fit them.
More donorsA clear, respectful process keeps willing people from walking away.

This is the Cold Ischemia Foundation’s proposal. Read the full framework on the Project Donor-Flow page.

Your Readiness Profile

About 35 questions. A profile that is yours alone.

Questions adapt to the organ you choose and the answers you give. Every answer gets an immediate, honest explanation. Your answers stay in your browser unless you choose to send them.

Our goal

Make the path from “yes” to the operating table faster, without ever making it less careful. Every week lost in a stalled evaluation is a week a person spends on dialysis, and a kidney that could have been used can go to waste. Efficiency here means fewer dropped calls, clearer next steps and no one lost between steps. It never means skipping medical tests, the psychosocial review, informed consent or your independent living donor advocate. The more efficient and the more thorough the process, the fewer organs are wasted and the more people get a second or third chance at a normal life.

What every donor should expect

  • Respect for your time. A call back within two business days, and a clear list of next steps. This is our standard for a fair program, not a legal rule.
  • Hard limits told up front, by phone, before you travel or lose pay.
  • Testing near home and one bundled visit wherever the program can do it.
  • An independent living donor advocate, whose only job is you. Programs are required to provide one.
  • A reason in writing if you are declined, and no judgment if you change your mind.
  • Honest costs. The recipient’s insurance usually covers evaluation and surgery; ask early about help with travel and lost wages.

After each call you can check which of these a program actually did. Reports from donors, once enough people report, show which programs treat people well.

Educational self-assessment only. Only a transplant center can evaluate whether you can donate.

Sources

  1. HRSA, Organ Donation Statistics (organdonor.gov).
  2. OPTN, “Organ transplants exceeded 48,000 in 2024”.
  3. Kasiske BL et al., “Outcomes of Living Kidney Donor Candidate Evaluations in the Living Donor Collective Pilot Registry,” Transplantation Direct, 2021.
  4. KDIGO, Clinical Practice Guideline on the Evaluation and Care of Living Kidney Donors (2017).
  5. OPTN, Living donor program requirements (Policy 14); UNOS Transplant Living, Living donor qualifications.
  6. Larson DB et al., “Return to normal activities and work after living donor laparoscopic nephrectomy” (646 donors surveyed).
  7. National Living Donor Assistance Center, Eligibility guidelines and how NLDAC helps.
  8. Living liver donation: Mount Sinai, liver donor surgery recovery; UCSF Benioff Children’s, living donor liver transplant.
  9. National Organ Transplant Act of 1984 (42 U.S.C. §274e) prohibits buying or selling organs; reimbursement of donors’ reasonable expenses is permitted.