Our services

What we do. What’s free. What costs.

Twelve ways we help patients, living donors and care partners. The basics are always free. When a request takes real work, a small, posted rate applies, scaled to what things cost where you live, so the free parts stay free for everyone.

Infographic: twelve Cold Ischemia Foundation services, what is free for each, and the rate when it takes more work. Individuals $65 per hour, organizations $150 per hour.

SHARE IT. SAVE IT. SEND IT TO SOMEONE WHO NEEDS IT.

How pricing works

Four steps. You choose how far to go.

Everything starts free. If you want us to do the work with you or for you, the cost rises with the effort, never with who you are or what you want us to say.

01

FREE

Self-serve + one 20-min call

$0
02

GUIDED

About an hour of our time

$20–$40
03

CUSTOM

A few hours of real work

$50–$200
04

PROJECT

Days of work, built to order

from $350
The twelve services

Free to start. Fair to go deeper.

Each service has a free version you can use today and a paid version for when you want our time.

01

Navigation Calls

We listen, map where you are in the process, and tell you the next three honest steps. Longer sessions are billed by the hour.

Free

20-minute orientation call and a personal roadmap.

When it takes more work

$20

per hour, extended sessions

02

Evaluation-Day Prep

A one-hour prep session, a mock visit, and a written plan for the day you walk into the transplant program.

Free

Question lists and a pre-visit checklist.

When it takes more work

$30

flat · 60-min prep + written plan

03

Insurance Appeals

We draft the appeal letter with the policy language, the deadlines and the evidence, ready for your signature.

Free

Appeal guide and letter tool.

When it takes more work

$40

per appeal letter, fully cited

04

Records & Paper Trail

We set up your records system and write the first round of records requests with you.

Free

Request templates and a running log.

When it takes more work

$30

flat · done-with-you setup

05

Advocacy Letters

A custom, sourced demand letter to an agency, a legislator or an institution: facts, law, ask, deadline.

Free

Sourced demand-letter templates.

When it takes more work

$50 / $200

family / organization

06

Funding & Independence Audit

A written, sourced profile of who funds an organization and where its voice may be limited, with every claim cited. Built for organizations, journalists and researchers.

Free

Five-minute self-check, plus three claims checked.

When it takes more work

from $350

full sourced audit of one group

07

Policy Briefs & Comments

A formal public-comment letter, or a briefing paper for a legislator, board or newsroom.

Free

Plain-language policy summaries.

When it takes more work

$75 · $400+

comment letter · briefing paper

08

Fact-Check & Source Review

We trace every claim in your document to a primary source and mark what is confirmed, disputed or only alleged.

Free

Up to three claims checked, sources attached.

When it takes more work

$25

per 1,000 words reviewed

09

Voice & Script Writing

Posts, speeches, three-minute scripts and op-eds in your own voice, with sources.

Free

Voice guide and a sample paragraph.

When it takes more work

$50 · $75

script · op-ed

10

Cinematic Explainer Films

A fully produced three-minute explainer with motion graphics, original score and on-screen text, for groups and organizations.

Free

Script outline and storyboard.

When it takes more work

from $600

3-minute film, score, captions

11

Workshops & Talks

Live training for support groups, volunteers, classrooms and conferences.

Free

30-minute webinar for patient groups.

When it takes more work

$150 · $350

90-minute · half-day

12

Support-Circle Launch

We help you start a trust-based circle and run its first four meetings.

Free

Full starter kit and meeting guide.

When it takes more work

$100

four facilitated sessions

Priced for where you live

Your price follows your cost of living.

A family in a low-cost area should not pay what a family in a high-cost city pays. So every base price is scaled to your area: your price = base price × your area’s cost-of-living index ÷ 100. We use the U.S. Bureau of Economic Analysis Regional Price Parities (RPP), where 100 is the national average.

Index values are from BEA’s published Regional Price Parities (2022–2023 releases; the year is shown with each state). Do not see your state or city? Look up your state or metro area on the BEA table and choose “My area”, or just tell us your ZIP code and we will confirm the index and quote your price in writing. Prices are rounded to the nearest dollar.

Posted rates

Simple, public rates.

These are base rates for an area at the U.S. average cost of living. Your price is scaled to where you live (above). Anything custom is quoted in writing before work begins, and you can say no at any point before then.

INDIVIDUALS$20/hr

Patients, living donors, care partners and their families.

ORGANIZATIONS$50/hr

Nonprofits, patient groups, schools, media, law firms and public officials.

CAN’T AFFORD IT?Say so.

Tell us in your request. Hardship requests are reviewed, and often free.

Who we serve

  • Patients, living donors and care partners
  • Patient and community groups, support circles, schools
  • Journalists and newsrooms
  • Legislators, staff and public agencies
  • Attorneys and nonprofits working on patient rights

Who we don’t work for

  • Drug and device makers
  • Dialysis companies
  • Insurers and payers
  • Hospital and transplant-program systems whose practices are at issue
  • Advocacy organizations funded by any of the above

That is how independence works in practice: no one who profits from patients’ care buys our time. Paying clients never get editorial control.

Our independence pledge

We do not accept donations. We take no funding of any kind from drug, biologic, medical-device or pharmaceutical companies, dialysis organizations, insurers, hospital systems, or any advocacy organization funded by them. We charge fees only for services you request, at posted rates, and fees never buy influence over what we research or say.

Questions

Straight answers.

Are you lawyers, doctors or financial advisors?

No. We are advocates, writers and researchers. Nothing we provide is medical, legal, tax or financial advice. Letters and briefs are advocacy documents you review and sign. For medical advice, talk to your healthcare team, and in an emergency call 911.

Do paying clients get a say in what you publish?

No. Fees pay for our time on your request. They never buy influence over our research, our conclusions or what we say about anyone.

How is my price set?

We start from a base price and scale it to your local cost of living using the U.S. Bureau of Economic Analysis index for your state or metro area. A family in a lower-cost state pays less than the base; a family in a higher-cost area pays somewhat more. We confirm the number and quote it in writing before any paid work starts.

What if I can’t pay?

Ask. Say so in your request and we will review it. The free tools, guides and one orientation call are always available.

How do I get started?

Send a request through the contact page. Tell us what you need and the deadline. We reply with what is free, what would cost, and a written quote before any paid work starts.

Tell us what you’re up against.

We’ll tell you what’s free, what would cost, and the next honest step.

Rates are starting prices for typical requests and may change. A written quote is provided before any paid work begins. No outcome is guaranteed.